FASD: Learning with Hope

Our family's journey toward a bright future

Index of All Posts

Please remember you can search our blog by keywords and categories from the sidebar. Thanks for reading! A note on language: we have been learning and growing as this journey has unfolded.  For example, we first started off using anonymous twitter handles of “FASD_Mum” and “FASD_Dad”.  That was before we met parents who themselves have FASD.  We have changed those handles now to SB_FASD and MB_FASD.  We are learning more and more every day about how to discuss these issues with respect and dignity for all.  We welcome discussions on ways to improve.

SB’s Favourite Post

Company’s Coming, 18 May 2016

You are entering a home where a child with #FASD is deeply loved.Hang your disbelief at the door, and join us. We need you.

MB’s Favourite Post

An Epic Experience, 23 April 2016

Most Viewed Posts/Pages

Please note this is skewed in favour of earlier posts because Facebook changed its algorithms in 2017 resulting in a decrease in views overall for those who don’t pay for promoting posts.

#1 – It’s not worth the risk, 5 February 2016


#2 – FASD Role Models, this isn’t a post but a page that has received widespread interest as it features adults with FASD who are doing wonderful things

#3 – FASD Meltdowns, 8 March 2016

#4 – The Brain and FASD

#5 – A Timely Reminder About Dysregulation & FASD, 4 March 2017

#6 – 34 – A Number Key to FASD Awareness, 5 September 2016

#7 – Thank You Teachers! But Did You Really Understand Me and My FASD?  9 July 2016

#8 – Sensational Media Hurts Those With FASD, 28 December 2016

#9 Extended Family – Please Support, Don’t Judge FASD Parenting, 25 September 2016

#10 – The Most Powerful Video on FASD We Have Seen, 7 December 2015


Chronological Order

Blog Lights
Blog Christmas Past

Teachers, It’s Not His Attitude, It’s His FASD, 22 November 2019

Blog PE

Be Angry, But Not at Those with FASD, 22 June 2019


Seeing What is Not Seen in the SEND Debate: FASD, 31 May 2019

Blog SENDMarch

When Going for a Walk is a Radical Act, 25 May 2019


25 Years After My Mom Died, 12 May 2019

Blog 12 May

Thank You Pip Williams, 27 April 2019

Blog Pip

Where’s Our Empathy for Those with FASD? 13 April 2019

Blog Empathy

A Bug, BRAT and Hope, 7 April 2019

Blog Virus

Slow It Down and Listen, 10 March 2019


A Dream to Help Me Cope With Anything, 24 February 2019

When the Flu Isn’t Just the Flu – What Happens When an FASD Caregiver Can’t Cope?, 15 February 2019


Doing the FASD Time Warp, 1 January 2019
BLog Time

The Run Up To Christmas is Difficult for Children with FASD, 15 December 2018

Clearing Shelves Stacked with Someone Else’s Dreams, 18 November 2019

An Open Letter to Prince Harry and Meghan (and every parent-to-be), 3 November 2018


Be an Adopter, 17 October 2018

Be an adopter!

FASD, Teens & Technology – What’s a Parent to Do? 3 October 2018


Shifting Sands, 15 August 2018

Blog Shifting Sands

Holidays Are Not Vacations, 27 July 2018


Gender Identity, FASD and Parenting in Uncharted Waters, 16 July 2018


Begging for Support, 23 June 2018

Always On – Hypervigilance and FASD, 10 June 2018


This Parent-Advocate Celebrates Messy Trails and Snails, 26 May 2018


Airing Dirty Laundry, 12 May 2018


Take Care, 7 May 2018


Crunch Time – Beyond Broken Doors and Dreams, 8 April 2018


Our Nine Million Moments of Marriage, 25 March 2018


FASD: Rethinking ‘Learned Helplessness’ & Empowerment, 8 March 2018


Nothing’s ‘Common’ About a Cold in this FASD Household, 25 February 2018


FASD – Not All News is Good News: Speculation about the Florida Shooter is Divisive, 17 February 2018


Food in an FASD Family, 4 February 2018


No Going Back, 20 January 2018
Blog NoGoingBack

Trusting Joy, 31 December 2017

Blog TrustJoy2

Father Christmas Finds It Hard, 18 December 2017

Blog Father Christmas loves a teen with FASD

RIP Sir Noel, The Christmas Dog – An FASD Love Story, 25 November 2017


Tears, Support and Bloody-Mindedness, 19 November 2017


Raising a Child With FASD Has Made Us A Stronger Couple, 3 November 2017


Mother enough? 24 October 2017

Blog Mum enough

Small Change Adds Up, 20 October 2017


Slime, Enchantment and FASD, 7 October 2017

Blog Slime

Four Letter Words for Help – FASD, 28 September 2017

FASD Awareness Day is Every Day, 9 September 2017


Dear GPS: Show Me the Positive Route, 31 August 2017

Blog Staying Positive is the Way Forward

Yes! Follow THEIR Dreams, Not Yours, 31 July 2017


A Super Teen with FASD, 23 July 2017


Fighting Fear, 29 June 2017


Ready for the Reset, 17 June 2017


A Shout Out To Our Friends (Yes, That Means You), 21 May 2017

Blog Friends

Lower the Drawbridge, 7 May 2017

Blog Vulnerability

The Same Child Shines When Seen Through a Different Prism, 29 April 2017


Old Photos and the FASD We Didn’t See, 15 April 2017

When a School Rocks, 31 March 2017


Finally! 18 March 2017


A Timely Reminder About Dysregulation & FASD, 4 March 2017


Prenatal Alcohol Exposure Damages Bones Too, 16 February 2017

Respecting Differences in Those With FASD, 28 January 2017


Dreamcatcher v. Mr. Orange Sun, 14 January 2017

Why a Broken Screen Can Make Me Feel Good, 7 January 2017

Sensational Media Hurts Those With FASD, 28 December 2016

Ten Tips for a Holly Jolly Christmas – Inclusion, FASD & That Christmas Dinner, 13 December 2016


Christmas Gift Ideas for Little Ones With FASD, 4 December 2016

FASD – Sometimes It’s a Puzzle, 1 December 2016


Coming Up for Air?, 12 November 2016


Gobsmacked, 5 November 2016


Extended Family, FASD, & Halloween Happiness, 25 October 2016


Adopting a Child With FASD, 22 October 2016


Defeat is the Enemy, 15 October 2016


Wrestling with “Death” is Tough for a Kid with FASD…and His Parents, 5 October 2016


He’s Too Special to Let Fail, 30 September 2016


Extended Family – Please Support, Don’t Judge FASD Parenting, 25 September 2016


Anxiety & FASD, 23 September 2016


FASD Awareness is Needed in Classrooms Every Day, 9 September 2016


34 – A Number Key to FASD Awareness, 5 September 2016


Calming Down by Melting Cheese & Getting Outside, 30 August 2016

We love a child with #FASD

There’s No Running Away from the Loss Every Adopted Child with FASD Feels, 27 August 2016


FASD Parents Have to Suit Up, 16 August 2016

Suit up

When the News Hits Home – FASD & Forever Families, 3 August 2016


Extended Family Can Do Tiny Things To Help FASD Families Struggling This Holiday, 28 July 2016


Great Expectations – A Sensory Birthday Extravaganza, 24 July 2016
We love a birthday boy with #FASD

The Coming Summer Holidays Cause Anxiety For Our Son With FASD, 19 July 2016
We love a child with #FASD-7

Thank You Teachers! But Did You Really Understand Me and My FASD?  9 July 2016

Dear Teacher -

SuperT – How to Go from Angry to Happy, 7 July 2016

We love a child with #FASD-6

Some Kindness Please, Brains are Involved, 25 June 2016

We love a child with #FASD-5

Reaching Out After an FASD Diagnosis, 19 June 2016

We could no longer pretend everything was 'normal'We started to reach out about our son's FASD diagnosisAnd that changed everything.

Expectations Versus Hope, 11 June 2016

In which we are reminded the only way to get through a hard time is to keep on going...

Room Swap, Part One, 6 June 2016


Company’s Coming, 18 May 2016

You are entering a home where a child with #FASD is deeply loved.Hang your disbelief at the door, and join us. We need you.

Mother’s Day, Part Two, 8 May 2016

Screen Shot 2016-07-10 at 9.53.31 PM

An Epic Experience, 23 April 2016


FASD Parents Don’t Get Sick Days, 18 April 2016


Stigma, 4 April 2016


The Power of Words, 31 March 2016


Playing with Fire, 26 March 2016


FASD Meltdowns, 8 March 2016


Mothering Sunday
, 6 March 2016

Mothering a child with FASD

FASD, ADHD & meds – what’s a parent to do?, 3 March 2016

We love a child with #FASD-3

Homework is evil, 23 February 2016

We love a child with #FASD-2

Some moments, 17 February 2016

We love a child with #FASD

A difficult conversation, 13 February 2016

Do you love someone who might have been affected by alcohol in the womb?

It’s not worth the risk, 5 February 2016


A Working Mum Looking In From Afar, 1 February 2016


Extended family members can support the support, 29 January 2016

FASD parents_carers can support each other, but you can support the support.

Vulnerability, 21 January 2016

1. Exposed to the possibility of

“The Worst Day Ever”, 18 January 2016

This %22Worst Day Ever%22has been brewing for a while.

INVOLVEMENT (An open letter to the extended families of a child with FASD), 15 January 2016

If you are sitting there reading this, wishing that there was something you could do....

It’s Always Better Outside – Even on the Hardest of Days, 10 January 2016

It's 6.30, you just want to sleep, instead you are faced with a brewing #FASD meltdown.-3

No safe level – critics miss the point, 8 January 2016

If you are pregnant or planning a pregnancy, the safest approach is not to drink alcohol at all, to keep risks to your baby to a minimum.

A New Year’s Resolution on Parenting and FASD, 1 January 2016

@FASD_Mum's New Year's Resolution

I Hear the Pain of the FASD Community, 27 December 2015


Respite (verb): To Grant a Period of Temporary Relief, 20 December 2015 (Part 2 of 2)

Respite (noun)_ A break from something difficult-2

Respite (noun): A Break from Something Difficult, 20 December 2015 (Part 1 of 2)

Respite (noun)_ A break from something difficult

A Love Song for the Men My Boys Will Become, 11 December 2015

I want to write a love song to the men my sons will be-2

The Most Powerful Video on FASD We Have Seen, 7 December 2015

The Most Powerful Video on FASD We Have Seen

Tis the Season (for FASD Sensory Overload), 5 December 2015Tis the season (for #FASD sensory overload

Our Son with FASD Rocks, 28 November 2015
Today was a good day. Today was a day we can celebrate. And when those days come around, we have to celebrate our kids. They’ve earned it. They need it.

Our Son Struggles with FASD – Just Look into His Backpack, 24 November 2015

The Building Storm of an FASD Meltdown, 19 November 2015
FASD Meltdowns

Nothing is Routine with FASD, 17 November 2015

FASD & Playing Alone, 26 October 2015

I Know How That Dutch Boy Felt, 24 October 2015

FASD Affects Siblings Too, 17 October 2015
I try to protect my brother and guide him safely through life, but sadly someti

Beyond the Behaviors of FASD: How My Dying Parents Showed Me How to Love My Son, 17 October 2015

Communicating Through the Barriers of  FASD, 10 October 2015
We love a child with #FASD

Ups, Downs, and FASD, 4 October 2015
One of the hardest challenges of FASD is the never-ending ups and downs of it.-4

Support and Resilience, 27 September 2015

FASD Awareness: The Day After, 10 September 2015
#FASD Awareness

FASD Diagnosis: Awareness Means Compassion, 9 September 2015
FASD Awareness Day

Welcoming the new & needed All-Party Parliamentary Group on FASD, 30 June 2015

Forever Family, 28 June 2015

School Trip, 3 June 2015

Diagnosis, What Then? 22 April 2015

Hard Times, 21 April 2015

We Knew, 16 April 2015

Meltdowns, 14 April 2015


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