This list is a work in progress, and far from complete. These are some sites that have been helpful for us as we started on our journey to understand FASD and its impact on our wonderful son.
UK – National organisations and support groups (though it sometimes feels it, we are not alone!)
- NOFAS UK – The National Organisation for Foetal Alcohol Syndrome UK (NOFAS-UK) is dedicated to supporting people affected by foetal alcohol spectrum disorders (FASD), and their families and communities. It promotes education for professionals and public awareness about the risks of alcohol consumption during pregnancy.
- FASD UK Alliance – A coalition of groups and individuals from across the UK who are united together for positive social change for those affected by Foetal Alcohol Spectrum Disorders (FASD). Affiliates include small local, regional and virtual groups as well as some of the country’s longest standing national organisations devoted to FASD, with links to international networks. Two online support groups provide a space for ongoing dialogue. FASD UK Facebook Support Group includes birth parents, foster carers, adopters, extended families, adults with FASD connected to FASD across the UK. FASD UK Professionals Facebook Support Group is for practitioners.
- FASD Network UK is a social enterprise providing support to caregivers of children and adults with Foetal Alcohol Spectrum Disorder. It also provides training for professionals and practitioners and advocates for services for people with FASD. FASD Network UK has localised services to accommodate families and practitioners across the North East and North Yorkshire and can offer support via social media to people across the UK. Be sure to check out their resources page. Also check out the FASD UK YouTube channel with links to a wide range of excellent videos.
- The FASD Trust– The FASD Trust was founded in 2007 by Simon and Julia Brown to provide support for those affected by FASD and training / information for the professionals seeking to support them. The FASD Trust runs support groups for those affected by FASD across the UK, hosts various professional forums and has a variety of training and other resources for those affected by or interested in FASD.
- SOS SEN: The Independent Helpline for Special Education Needs (UK) – helps people to find their way through the legal and procedural maze which is so daunting to so many who try to obtain satisfactory provision for a child’s special needs.
- The European FASD Alliance was founded in February 2011 to meet the growing need for European professionals and NGOs concerned with FASD to share ideas and work together. The European FASD Alliance is a nonprofit international organization registered in Sweden.
- The UK & European Birth Mum Network – FASD is a network of women who have consumed alcohol during pregnancy and may have a child or children with Fetal Alcohol Spectrum Disorders (FASD).
- AFASAF (Pinterest) – excellent links re the brain and FASD
- NeuroDevNet, a Canada Network of Centres of Excellence (NCE), is dedicated to helping children overcome neurodevelopmental disorders. The vision of the network is to accelerate the pace of understanding the causes of neurological deficits and to transfer this knowledge to health care professionals, policy makers and communities of interest.
- Multilingual fact sheets
- National Clinic for Foetal Alcohol Spectrum Disorders – Led by Dr Raja Mukherjee, the National Clinic for Foetal Alcohol Spectrum Disorders specialises in assessing and treating children and adults with FASDs. Theyare the only specialist FASD clinic in the UK and one of the very few places that can confidently diagnose Alcohol-Related Neurodevelopment Disorder.
- How foetal alcohol spectrum disorders could be a hidden epidemic, Penny Cook and Raja Mukherjee, The Conversation, January 13, 2016
- So you have been diagnosed with FASD, now what? A handbook of hopeful strategies for youth and young adults by Boyle Street Education Centre & Agnieszka Olszewska, 2007.
- FASD Forever – Jeff Noble is the Founder and CEO of, an organization that provides hope and education to people caring for someone living with Fetal Alcohol Spectrum Disorder (FASD) through online applications and in-person training sessions, demonstrations and consultations.
- Please see the education page of this blog.
- Please see the parenting page of this blog for more resources.
The Brain & FASD
- Please see the brain & FASD page of this blog for more resources.
FASD is 100% preventable. The national organizations above have information on this important topic. We encourage people to learn more about it. However, on this blog we are focused more specifically on those who have FASDs. It does not mean we do not consider prevention an integral and important topic. This hip-hop video from Australia sums it up well.