Resources

This list is a work in progress, and far from complete. These are some sites that have been helpful for us as we started on our journey to understand FASD and its impact on our wonderful son.

UK – National organisations and support groups (though it sometimes feels it, we are not alone!)

  • NOFAS UK – The National Organisation for Foetal Alcohol Syndrome UK (NOFAS-UK) is dedicated to supporting people affected by foetal alcohol spectrum disorders (FASD), and their families and communities. It promotes education for professionals and public awareness about the risks of alcohol consumption during pregnancy.
  • FASD UK Alliance – A coalition of groups and individuals from across the UK who are united together for positive social change for those affected by Foetal Alcohol Spectrum Disorders (FASD).  Affiliates include small local, regional and virtual groups as well as some of the country’s longest standing national organisations devoted to FASD, with links to international networks.  Two online support groups provide a space for ongoing dialogue.  FASD UK Facebook Support Group includes birth parents, foster carers, adopters, extended families, adults with FASD connected to FASD across the UK.  FASD UK Professionals Facebook Support Group is for practitioners.
  • FASD Network UK is a social enterprise providing support to caregivers of children and adults with Foetal Alcohol Spectrum Disorder. It also provides training for professionals and practitioners and advocates for services for people with FASD. FASD Network UK has localised services to accommodate families and practitioners across the North East and North Yorkshire and can offer support via social media to  people across  the UK.  Be sure to check out their resources page.  Also check out the FASD UK YouTube channel with links to a wide range of excellent videos.
  • SOS SEN: The Independent Helpline for Special Education Needs (UK) – helps people to find their way through the legal and procedural maze which is so daunting to so many who try to obtain satisfactory provision for a child’s special needs.

International

  • The European FASD Alliance was founded in February 2011 to meet the growing need for European professionals and NGOs concerned with FASD to share ideas and work together. The European FASD Alliance is a nonprofit international organization registered in Sweden.
  • The UK & European Birth Mum Network – FASD is a network of women who have consumed alcohol during pregnancy and may have a child or children with Fetal Alcohol Spectrum Disorders (FASD).
  • AFASAF (Pinterest) – excellent links re the brain and FASD
  • NeuroDevNet, a Canada Network of Centres of Excellence (NCE), is dedicated to helping children overcome neurodevelopmental disorders. The vision of the network is to accelerate the pace of understanding the causes of neurological deficits and to transfer this knowledge to health care professionals, policy makers and communities of interest.
  • Multilingual fact sheets

Diagnosis

Online support

Education

Parenting

The Brain & FASD

Prevention

 

FASD is preventable. The national organisations above have information on this important topic. We encourage people to learn more about it.  However, on this blog we are focused more specifically on those who have FASDs.  It does not mean we do not consider prevention an integral and important topic.  This hip-hop video from Australia sums it up well.

Here is another great music video from the Bissell Center and EFAN

 

4 thoughts on “Resources

    1. Excellent suggestion – it has now been added. Thanks for the important and good work to all involved in the UK & European Birth Mother Network. Also following you on twitter: @EUFASDBIRTHMUMS

      Like

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