We are still adding to this section. Most parents feel like they are barely keeping their heads above water, when in fact, we are daily helping our kids in all kinds of ways. The brain is a wonderful thing, and new connections can be forged from our positive and creative parenting approaches. That said, it’s not easy to know what is best in such a rapidly changing environment. This list is incomplete – we will continue to add to this. Suggestions welcome!
Parenting tips for kids with FASD
- Oregon Behavior Consultation YouTube videos are an excellent source of information and practical tips.
- When you feel like you don’t make a difference, remember this – Rachel Martin, Huffington Post, 6 February 2015
- 5 Lessons I’ve Learned From Parenting A Child With FASD, Mike Berry, 18 January 2016
- Broken Things, by Kathleen Fleming, 15 October 2015. This piece describes so beautifully some of the challenges of parenting, it also applies to kids with FASD.
- 10 Ways Kids With FASD Are Just Different- And, No, I Can’t Just Relax, from FASDFamilies.com, an insightful and well-written piece by a mum
- When I Realized Why My Son Melts Down at Home but Not at School, by Michelle Meyers, this is about autism but it could just as easily be about FASD
- FASD: Strategies Not Solutions, Edmonton and Area Fetal Alcohol Network (this is excellent, with age-specific suggestions)
- 10 Strategies That Work For Kids With FASD, FASD Families – lots of concrete suggestions, tips and a bit of humour
- Information for parents/carers following a diagnosis of FASD by Dr. Cassie Jackson (née Hunt) Hunt), Highly Specialist Clinical Psychologist, Psychology Service, Suffolk Community Healthcare.
- Violent & Challenging Behaviour – The Basics, by Yvonne Newbold
- Interventions and Support for FASD, Michigan Coalition for Fetal Alcohol Resources, Education, and Support (MCFARES) – has lots of great links & videos
- Behavior Environmental Adaptation Model: The 15 BEAM Rules of FASD Behavior Management (Also known as the Fasstar Trek Model, Teresa Kellerman, 2004
- How to Help Someone Who Has a Fetal Alcohol Spectrum Disorder, by CPI Training and consulting in behavior management & dementia care.
- Guides for Parents, by Cerebra – a collection of health and social care information for the parents and carers of children aged 0-16 years with neurological conditions (not necessarily FASD specific), including info regarding legal issues, rights, education.
- Dealing with Stealing, video with Dr. Nathan Ory, POPFASD
- Why Typical Behavioral Approaches May Not Work, video with Dr. Nathan Ory, POPFASD – includes concrete examples of what might work
- 9 Tips for Creating a Sensory Space at Home on a Budget, Christina Massimi, The Mighty, 12 January 2017
- Tips for Caregivers – by SOS Manitoba – this series of sheets is excellent (available via PDF at the bottom of the webpage)
- Oregon Behavior Consultation YouTube videos provide extremely useful insights into cognitive support techniques
- Parenting at the Intersection of Values and Behaviors, FASD Northwest, Eileen Devine, February 28, 2018
- “Living in the Here and Now,” FASD Wellbeing Workshop, Dr Cassie Jackson and Andy Jackson, NOFAS-UK
Blogs written by families affected by FASD – it’s so important that we help others understand FASD, beyond the medical aspects. These bloggers help give insights into lives affected by FASD.
- FASD Learning With Hope (one of our favourites)
- Life with Katie and Pip: Our Adoption Story
- Quirks and Chaos: “My adventures and thoughts as I mother my two youngest children. They are the youngest of seven and both have special needs: a boy with autism and an adopted little girl with Fetal Alcohol Syndrome and ADHD” (Note this author uses creative comic strip format to help others understand her kids)
- FASD Families
- Tales from Our House
- Adopting Faith: A Father’s Unconditional Love,
- EACH Child is Special: Working Smarter Not Harder to Raise Every ONE
- Familiestied: “a family brought together by adoption, playing their hand the best they can”
- Truer films blog, experiences of a family raising a child with FASD designed to”help people connect through empathy and understanding…through allowing us to let go of the pressures of perfection”
This beautiful video is about the importance of diagnosis and the impact it can have on mothers/children, changing lives.
Many parents have questions about what they should tell their children about their condition. This video by a woman who teaches kids with special needs, and who herself has learning disabilities, is inspiring.